Showing posts with label sepphotography. Show all posts
Showing posts with label sepphotography. Show all posts

Friday, October 8, 2010

exceptional kids (and their families)

I'm not in love with the phrase "kids with special needs." It sounds sad to me. I prefer "exceptional kids" or something like that.

We met a bunch of exceptional kids last week.

As we walked the halls of the various research facilities of that remarkable place we call the NIH , it broke my heart to see some of them. The ones racing each other in their wheelchairs...legs so small and weak resting calmly in their chairs while the rest of their bodies flailed about in the race. The bald little girl with deep, dark circles under her eyes hugging to her mother's arm. The tiny fifteen-year-old boy waiting for a transplant of some kind with the wit to keep Dave interested in his football expertise for a long time.

There was the sweetest eight-year-old in the waiting room with us one of the days we were there who Lucy from that point forward claimed to be her new best friend. Lucy wasn't phased by the fact that half of her dear new friend's face was hugely swollen three times the size of the other half and that she only had one working eye.

We saw the looks in the parents: the bravery. the heart-wrenching worry. the exhaustion. Some families stay there for months. Some come on a regular basis. They have the routine of getting through all the serious security and shuffling through to doctor after doctor down pat.

Their strength is inspiring.

Before we left on our trip I had the opportunity to photograph one of these exceptional kids.

No, I don't do photography any more, but I couldn't turn this little girl and her family down.

Meet Esra and her wonderful family:She has a syndrome all of her own and she needed a way to get around and be able to function in life with her limited mobility.

And her amazing family figured out how.

They found a guy in England who made this special chair for her.You should see her maneuver that thing around. She's a pro.

They have overcome a bunch of odds.
Because of strength and sheer grit.

And mostly, because of love.This little sister of hers will never know the difference. She loves to ride on the back of that chair, and is used to waiting for her parents to maneuver setting it all up when they get new places.
Check out more details about their story and how it all began here and here.

I'm so thankful for inspiring examples.

P.S. I just read this great quote on an email from the Foundation for the Blind and thought it was perfect for this post:

Nothing in this world can take the place of persistence.

Talent will not; nothing is more common than unsuccessful men with talent.

Genius will not; unrewarded genius is almost a proverb.

Education will not; the world is full of educated derelicts.

Persistence and determination alone are omnipotent.

The slogan 'press on' has solved and always will solve the problems of the human race.

-- Calvin Coolidge

Thursday, February 18, 2010

mini photoshoot

I have a friend I couldn't turn down when asked to do a photo-shoot for his client.

Why? Well, because he caught me off-guard when he asked if I'd do it, and most importantly I'm in his debt for helping me out with Lucy stuff. (He has a son with the same syndrome and he and his family have shared such a wealth of information with us...we're SO thankful for them.)

But I'll admit, I dreaded this shoot. I'm SO out of the loop. I realized how easy this had become to me when I was doing it on a continual basis before I quit. All the butterflies had gone and it had become second nature.

This time the butterflies were back and I thought I would hate it.

But I was wrong.

It was like riding a bike...ordering this nice guy around like I do in photoshoots came right back to me ;)

And I'll admit one more thing...I ended up liking it after all.
Oh man, photography is fun.

(But I'm still on hiatus...since I'm trying my darndest "focus" on what's on the "hot plate" right now.)

BTW, speaking of photography, my sister has the Motherhood photography contest online now at and it's fun to see the great Motherhood photos that were sent in. Click here if you'd like to check them out!

Sunday, September 20, 2009

summer mini-photoshoots

This photoshoot was scheduled forever ago, and I was so happy I could finally take pictures of this family we love so much.
Especially since it was up at Aspen Grove, and, well, you can't really get a prettier backdrop than the Sundance area.

I just love these guys.

I love how the parents parent, and how cute the kids are together.

And then I snapped a few pics. of my sister's family at the beach at Bear Lake in between when we were trying to do our own family pic. And man, I gotta say I sure think this family is pretty darn cute too!

Sunday, May 17, 2009

a couple more photoshoots...

Since I'm not doing photography on a regular basis anymore I'm so darn slow at posting pictures of those I had scheduled before I "quit."

So here are a couple different shoots.

First there's this extended family. I usually decline extended family shoots...I just like to do the smaller families mostly so I can shoot the kids...that's my favorite. But I couldn't turn down this her. We worked in YW together years ago and she's one of the sweetest people I know.And it was fun to meet her family...her kids and their kids.This little boy has a few little special needs, so I especially loved photographing him, and trying to capture the love his parents obviously had for him.
And I couldn't resist snapping a shot as they were trying to make the three grandsons smile.

Then there was the "P" family. And the great thing about them is that Mrs. "P" happens to be Grace's teacher. Boy howdy was Grace ever excited about that one!
I loved this shoot because as I was driving to our photoshoot destination it started sprinkling.

Then raining.

Then pouring.

What do you know...the weather forecast was wrong in the desert.

I mean, can you blame them when all they usually have to say is "blue skies and sunny again" over and over every day?

Well, they were wrong this day. But it was kind of serendipitous because man oh man we had a fun shoot.

The rain was intermittent throughout, but it was kind of fun to get creative through it, and we even got a full-on rainbow at the end.
We did a few senior shots for their graduating son:
I just hope my kids will genuinely "like" each other like these kids seemed to when they're all teenagers. They had such a great spirit about them all.
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