As Lucy's family, we are committed to doing all we can to save the vision in these pretty baby blues:
Going to the Marshfield Clinic last month (back here) jump-started Dave and me into some serious business as to how to go about doing just that.
We learned sooooo much and came home armed with information and important updates for Lucy’s health.
But on top of that, we feel incredibly inspired to help this organization reach out and connect with other BBS families as well as to get on the radar with knowledgeable doctors and scientists who can offer real, tangible help. (For more details on HOW, click over HERE for a detailed explanation on the I Love Lucy blog.)
We don't have long. We have realized over the years that if we wait for the normal process of people on foundation boards to make up their minds on which things to fund and for the best doctors to put efforts randomly on BBS kids amidst the myriads of other things vying for their attention, it will be too late for Lucy and so many of these other kids. (BBS kids usually lose their vision by early adolescence.)
We need to make things happen.
And in this case (the same as in many cases), money speaks.
So we are committed to help raise as much as we can.
We are passionate about this because we know how much this could mean to Lucy and her future not to mention so many other BBS kids. We have felt the heart-break of so many other families all over the world as we have met them either at conferences or through blog cyberspace.
BBS is real. And it is heart wrenching. And now we feel like we can DO something about it which makes us feel so empowered.
Dave and I have committed to help raise $15,000 for the cause (it will take well over $50,000 to get the registry off the ground...again, more details on the I Love Lucy blog). We have decided to concentrate our efforts during the months of November and December to raise all that we can.
So far, our main effort is that we are helping to host a Gilbert Turkey Trot on Thanksgiving Day which Dave has been working so hard on. He has put it on with friends the last couple years and it has always benefitted charities that need help, but this year means a lot to our family because half of the proceeds go to fight BBS through the "I LoveLucy Fund" (The other half goes to an awesome organization called Brain Food).
We are doing the Turkey Trot in lieu of the Vision Walk this year so we can raise enough for the Foundation Fighting Blindness to take us seriously and also so that the money we raise can go directly to helping BBS vision problems.
We would love to enlist your help.
If you are local and want to sign up for the Turkey Trot, click HERE. (I might add that Dave put together that awesome website with a lot of blood, sweat and tears so let's give him a serious shout-out for that).
If you are not local, and would still like to contribute in any way you can (even a dollar or two here or there will help), go to the "I Love Lucy" blog HERE and click on that big, red "DONATE" button on the right under the header.
Since it is the season for service many families are looking for ways to serve, we are hoping that any families interested in a service project to fight against blindness with us can put their heads together with their kids and think of some ideas to help. Whether it is a simple donation or proceeds from a lemonade stand (or a "hot chocolate stand" in some areas!) or even a "Children for Children" concert with neighbors (see back HERE for details on that), any part of that makes a big difference.
Dave and I are committing to match any funds raised on the "I Love Lucy Project" blog, which makes any efforts go that much further.
Please let us know if anyone out there has any other ideas.
As you can see, we are pretty passionate about this. One idea we are mulling around is to do some sort of auction for some of Lucy's best artwork. Or maybe greeting cards with some of her art printed there...hmmmm..
Clinical trials take a LONG time and our hearts are just aching to make them a reality for Lucy before it is too late.
Oh how we love this girl of ours.
And how we hope and pray that we can help her and other BBS kids any way we can.